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blamieren oder kassieren fragen pdf 36Raising awareness of epilepsy in the U.S., from the perspective of African American adolescents.
Despite significant recent progress toward increased recognition, epilepsy, epilepsy research, and antiepileptic drugs for African Americans, a recent national study found that only 15.1% of African Americans with epilepsy had received a correct diagnosis of epilepsy and only 4.4% had received an accurate diagnosis and appropriate treatment. African American adolescents have been specifically excluded from most seizure and epilepsy research, leaving a population of young people who are most affected by seizure occurrence, whose voices and concerns have been largely ignored by those who develop epilepsy-related treatments. This paper outlines the barriers to awareness and treatment of epilepsy in African American youths. A qualitative study among African American adolescents and young adults with epilepsy (n = 15) explored barriers to diagnosis, treatment, and community, social, and school involvement. All participants used English as their primary language. Qualitative, descriptive, qualitative, grounded theory. The adolescents and young adults’ experiences included lack of awareness of symptoms; challenges to receiving a correct diagnosis; inconsistent school policies and/or practices; stigma; and difficulty accessing medical, social,
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